Lily's link has changed so if you are missing her updates, please change your link for her to her new one http://www.lilyslifeisgreat.com/blog
Friday, August 14, 2009
Saturday, August 1, 2009
I have a new website!!! Lily's Life is Great! is full of wonderful new things - check it out!
Monday, July 27, 2009
Everything Lily - Michele
Blankie, Bears & Boys - Kristen
Barbie Holiday - Shannon
Barbie Spring - Lauriann
Compotes - Amy O
Blue Yonder Tee - Lauriann
Vinyl Explanations - Rania
Cards - Adele
Frame - Cheryl
T21 Afghan - Kim
Candlesticks - Ashley
Bracelet - Cathy
SammyTells - Julie
Treasurer Box - Mary
Lisa Leonard - Stephanie
Quilt - Bonnie
Thanksgiving Point - Jeana
Sand Hollow - Carson
Congratulations to all of you! I will be sending you an email and putting these items in the mail. Thank you so much for being part of Lily's 10th Birthday and helping out Jaxson and Parker
My Dearest Lily Girl!
I remember the day you were born, ten years ago! I got a call from Mark, our adoption worker, and he said you were coming! You were a couple of weeks early, so we were surprised! I asked if I could go and wait in the hospital lobby because I was so excited, but I couldn't. It was for the best, your birth mom, Mommy Alison and her family, needed some time with you. I told him to call back as soon as you arrived I didn't care how late it was!
You arrived at 9:45 pm. You weighed 7 lbs and 8 oz. and you were 20 inches long. You took your first helicopter ride the next day.
Mommy Alison and her family wanted Dad to give you a blessing because you needed surgery right away. We had already been told your intestines were mal-rotated, that means they were all tangled up! I tried all day long to get permission to go up and see you. The word hadn't gotten from where you were born to Primary Childrens. When it did the social worker didn't give the head nurse the okay and went home! Finally a nurse called somebody at their home and we got a call to get up to the hospital as soon as we could because you were going in for surgery at 10:00 p.m. It was after 9:00 pm when we got the call!
Grandma Shirley was here from Arkansas helping your Aunt Wendy because your cousin Easton was born just a month before you. She was waiting at the house with us for the phone call. Dad had called Tom so he could help give you a blessing. We were all just waiting. Grandma and I drove up and Dad drove up with Tom. Once we got to the NICU we had to scrub in. I thought the whole process was taking forever. When we finally walked into your room and saw you we were all overwhelmed by your beauty. You had all this dark hair that stuck straight up on your head, all your brothers and Brittany were bald when they were born!
Dad and Tom had just enough time to give you a blessing before they came in and got you for surgery. On the way down to the operating room the doctor was explaining things to us and kept talking about your esophagus. I finally asked what she was talking about and that was the first time we found out you were missing your esophagus.
After they took you into surgery Tom, Grandma, Dad and I were all standing around talking about you and I was saying how hard it was to hear the blessing over all the noise in the room. It didn't matter that I didn't hear it because Tom said he was overwhelmed by the feeling of the spirit that came from such a tiny little baby. I knew then you were special.
I called GrandMary and left her a message that we had found out about your esophagus. I think she might still have that message saved on her phone!
After we got home Dad and me sat on the floor at the foot of our bed and one of us said "what have we gotten ourselves into" We were tired and overwhelmed by all that had happened in such a short time.
We had no idea how much joy, love, laughter, and hapiness you would bring to so many! I love you so much Lily! I love having you as my sidekick and my daughter. I hope you have a great 10th birthday. LET'S GO SWIM!!
For those of you not joining us at the pool, we hope you take a look at Lily's Birthday Bash one more time. You have until 5:00 p.m. to bid on the items. Please remember that the proceeds of the raffle go to our friends Jaxson and Parker.
This has been a fun way to celebrate Lily! Thank you to everyone that has helped, donated, and supported this cause.
This will be the last post that will be posted on this blog. We are moving to a new website on August 1st. We hope you will join us there! We will list the winners tomorrow and contact them by email.
Sunday, July 26, 2009
Just one more day until our baby girl turns 10! It's bittersweet to think about. I have got a cake ordered, the swimming pool party room reserved, now for a gift. She is the hardest one in my family to buy for. She would honestly be happy with a ream of paper, stapler, crayons, tape, and scissors! She wants to go to McDonald's for her birthday dinner - ick!
We have had a great time, picking things out for the Birthday raffle. I think she is tired of taking pictures with them though. I interrupt her Disney watching!
Saturday, July 25, 2009
Lily loves watching movies, especially when we are in the car. She likes old musicals, and Disney movies. We have had to buy two copies of Oklahoma, State Fair, Charlotte's Web, and a few others because she watches them so much. So, we have found three oldies, but goodies for your viewing pleasure.
Another of Lily's favorite things is Cotton Candy (Cotton and Candy according to Lily!) and carmel popcorn balls that you buy at the gas stations. So along with the movies the winner of this drawing will get cotton candy and a carmel popcorn ball.
Leave your comment, link and comment on your blog about us, and leave a comment on Lily's Birthday Bash Post!
Friday, July 24, 2009
We are headed out of town again!
This time we are camping with Brittany and Gordon!
Tomorrow, if the scheduled post options, work Lily's last giveaway will be posted. If it doesn't post you will see it late Sunday.
In the meantime go check out the raffle items.
There are only 4 more days of Lily's Birthday Bash!
Thursday, July 23, 2009
Grizzly Adams would be on the left and Lil' Snoopy would be on the right.
They both bark, turn their heads, and shake their tails.
One will hold still for pictures, and not give you a look like
"Are you kidding me, you want me to sit!"
Well since there is only one Grizzly Adams I guess you will have to settle for Lil' Snoopy!
Jaxson and Parker we hope you like your new puppy!
You know the drill, comment on this post, link & comment on your blog and leave a comment on Lily's Birthday Bash post, so we know you're seeing all the cool things!
Wednesday, July 22, 2009
Both of my moms, GrandMary and Grandma Shirley for donating items for the raffle.
Mark Whetzel at Vanguard Golf for donating the rounds of golf!
Maybell's Soaps and Candles
Staci at Munchie Me Designs
Marlene at The Musings of a Mother
The T21 Traveling Afghan Project
Amy at Bunny Rose Cottage
Lisa Leonard Designs
Jaxson's Blankies for Babes
Tuesday, July 21, 2009
There were two videos of Lily and her dad doing jokes. Everytime I would upload the second one it would change the first one into the same video. Oh computers!
Don't forget to pause the music at the very bottom of Lily's blog so you can hear the jokes :-)
GO TO THE POST BELOW FOR THE GIVEAWAY!
A little girl needs Daddy
For many, many things
Like holding her high off the ground
Where the sunlight sings!
Like being the deep music
That tells her all is right
When she awakens frantic with
The terrors of the night.
Like being the great mountain
That rises in her heart
And shows her how she might get home
When all else falls apart.
Like giving her the love
That is her sea and air,
So diving deep or soaring high
She'll always find him there.
By Nicholas Gordon
Really need I say more about Lily and her dad.
If you want the owl here's the drill...
comment on this post
comment and post a link on your blog
post a comment on the Birthday Bash post
Monday, July 20, 2009
My dad is cute. He's awesome. He's beautiful. He's my dad. He's funny. (Note from mom - I just asked Lily if he said funny jokes, her response "NO") He works. He builds a building. I like to do things with him. We go see Grandma and Aunt Lynne. He's happy. I want him to tell me a funny joke. He's cool dad. I work with him. That's it.
The following is a video of Lily singing her favorite Hannah Montana
Sunday, July 19, 2009
Saturday, July 18, 2009
$10.00 WalMart Gift Certificate in honor of Gordon
Brittany is a beautiful woman who is amazing with her little sister. She is patience, and kind, she answers ALL of Lily's questions, she braids Lily's hair, and colors with her. Brittany gives her parents good advice when it comes to the brothers of the family.
Gordon is this BIG guy about 6'5", who believe it or not wears a pink bunny costume at his family Easter parties. Now that's what I call a good guy! He has got to be one of the friendliest people I know. Lily adores him.
Together Brittany and Gordon love the outdoor life. There weekends are spent camping, fishing, playing with their dogs, and working on her new house.
Friday, July 17, 2009
We are at a family reunion in Colorado Springs, but Lily's Birthday Bash is still happening! Tomorrows giveaway(s) is all about Brittany and Gordon. Brittany is Lily's sister and Gordon is Brittany's fiancee.
Lily tells people she has a sister, three brothers, and A GORD!
Thursday, July 16, 2009
Lily is turning 10 on July 27th!
She is very special to her family and has given us so much!
So we are celebrating with Lily's Birthday Bash!
We have put together a wonderful raffle and the proceeds will go to two of Lily's friends, you might have guessed Jaxson and Parker!
Along with that we are randomly giving away 10 items until July 27th!
So far we have given away a swimming pool & towel, a volleyball, a muscle shirt & water bottle, a Beatles CD, and now Suki Jewelry!
What's next... you'll just have to come back and visit!
In order to qualify to get this $30.00 certificate you must to do the following...
- post a comment on this post
- comment/link on your blog
- post a comment on Lily's Birthday Bash post, so we know you've seen all the cool things!
Okay, a little about mom. I was going to be an airline stewardess! I was accepted to Western Airlines school way back when. I fell in love instead.
Jeff and I have been married almost 25 years. Jeff brought his daughter Brittany along into the marriage. I have to admit I was a terrible stepmother! But, both Brittany and I hung in there and I love her like my own, because she is (you'll get too read about her in a few days)! Then came the boys, three boys in six years. I rested for about 8 years, then the search for my other daughter began! You can read the story of how Lily came to be here.
I don't know if Lily made me see how important family is or if was time passing, getting older, losing loved ones and just plain old life. I do know that I wouldn't be blogging if I didn't have Lily in my life. I wouldn't have met so many wonderful individuals that have Down syndrome and their families if Lily wasn't in my life. I would like to think I would be just as charitable and volunteer oriented even if I didn't have Lily, but who knows. I do know this beautiful little girl has made me better and for that I am grateful.
For that I want to give back... And this is how we're (Lily and I) going to do that. We are in the process of setting up Lily's Life is Great website, where she will be selling her brand of items, tee-shirts, bags, and other things. 21% (you get the Trisomy 21) of the profit will go to an individual or organization of our choice. That choice will change monthly; one month it might go to help feed children in Africa, to the local pet shelter, or to individuals just like Jaxson and Parker who are near and dear to our hearts. We hope word will get out about this and that we can help.
NOW for the month of August Suki Jewelry has agreed to give 20% of their profit to Lily's cause. Lily already has two friends that get to split that profit, along with whatever we sell from Lily's items. Of course we will keep you posted!
Happy Birthday to
Jaxson's mommy - December 13
Parker's mommy - July 15
Lily's mommy - July 16
Get posting to win Suki Jewelry certificate!
Wednesday, July 15, 2009
Plus a few pictures from this past weekend...
Tuesday, July 14, 2009
~ Brian Tracy
Tim singing to Lily and trying not to laugh at her rocking out!
After the concert. Lily loved every minute of it. Tim went to kindergarten with the guy in glasses, and Junior High with the guy in green. Who knew!?!
Remember in order to win The Beatles 1 C.D. you need to -
- Make a comment on this post
- Make a comment/link on your blog
- Make a comment Lily's Birthday Bash post
Sunday, July 12, 2009
We are back from the wedding, fast trip. Guess who caught the bouquet? Yes, that would be Lily, Sklyer will be so excited!
Tomorrow's give away is all about Tim! This is what Lily has to say about her brother Tim.
Tim is cute. I love him. He watches me, then mom and dad go out to dinner together. We went bowling. Tim screams so loud in a band. He makes pizzas, its good. That's it!
Below is a slide show of the wedding.
- I contacted the adoption agency.
- October/November 1998 my feelings got stronger (birth mom conceived Lily)
- January 1999 Jeff and I went to a special needs adoption seminar, there was a little girl there with Ds that sat with Jeff all through lunch. I left thinking I could have a baby with Ds.
- Last part of March, first part of April I got the feeling that the adoption might not happen (birth mom just found out baby would have Ds and was being counseled of her options)
- April got a call from adoption agency. I had left all zip codes off the references. I knew the adoption was back on full force.
- Saw a t.v. show about adopting children with special needs and talked with a friend about children with disabilities. I knew then I would be getting a daughter with Ds.
- June 2, 1999 had home inspection. Adoption worker told us about birth mom's baby. He wasn't suppose to because we weren't cleared yet; our names are very common. I told him I already knew about Lily and she was ours.
- That wonderful day when the adoption worker called - He sat us down in his office and said that he had received this letter and wanted me to read it (can you say nervous!)
This is the beginning, it is dated 7/7/1999 - I am so grateful that I got your family to choose from... I feel very blessed to have you guys as the parents of my child.
After reading the letter they presented us with a basket of cookies. One said "It's a girl!" The boys loved it.
Saturday, July 11, 2009
One blanket. Many states. Many countries. Hundreds of families. One common thread!
This mom made an (one) afghan and she sent it to one child who held it, and loved it, then they sent it on to another child with blessings and prayers. And, it started all over again.
Yes, you can order your very own (we are raffling one off!)
Second we have MayBell's Soap and Candles
Now I can understand a parent stepping up, but Maybell's Soap and Candles is run by two girls, two friends, who happen to each have a sister with Down syndrome.
The proceeds from these wonderful soaps and candles go to Down syndrome awareness. Yes, we are raffling off a soap and a candle with the Lily of Valley items.
Thank you Maija and Rylee for being wonderful people!
Third we have Jaxson's Blankies for Babes
Seriously, how much can a mother take on? This is Jaxson's mommy doing this! Do you think she has time to sleep, I don't! She along with some really good friends make blankets, free of charge, and sends them to sick children. In the video below it talks about being able to hold that blanket while your child is in surgery, what a comfort that would bring. Again amazing...
Click on this beautiful little girl to watch a special video.
Jaxsons blankies for babes
This is the one we have to raffle
Fourth is 5 Minutes for Special Needs
Parker's mommy is managing editor at 5 Minutes for Special Needs. Where she finds those 5 minutes I will never know, but I am grateful for her and all of the wonderful, creative people that share their thoughts, insight, lessons, instructions, joys, and sorrows with us each and every day. I am lifted by them, given a different opinion, and viewpoint.I am taught by them. I have cried tears of sadness and tears of joy. Take 5 minutes for yourself to visit.
ALL FOR THE LOVE OF A CHILD
Friday, July 10, 2009
We still can't believe that some of these things have not been bid on!
Remember the proceeds of thsi raffle go to Jaxson and Parker!
I am turning 10 on July 27th, so I am having a BIRTHDAY BASH!
The proceeds from MY BASH will go to my friends Jaxson and Parker.
I think Jaxson and Parker are cute!
ITEMS are $5.00 each
You can make a contributation for just the items you want!
Or you can make a contribution at the very bottom of the page
Lots of people donated items to make this a great BASH.
If you want to donate an item contact my mom at email@example.com
Check back to see if items have been added - we will also blog about it
The BASH will close at 5:00p.m. on July 27th
We will ship your items to you.
To add to the fun on 10 random days we will be having free give aways!
And, even better, Jaxson and Parker will also get what we are giving away!
We will pick those winners from the people who comment on the item of the day.
1st item - Everything Lily of the Valley!
Crabtree & Evelyn body lotion & bath & shower gel in Lily of the Valley scent
Catherine Lee's book The Language of Flowers
Candle & soap in Lily of the Valley scent from Maybell's Soap & Candles
We have TWO of these!
2nd item - Blankie, Bear & Boys
Jaxson's mom donated a blankie from Jaxson's Blankie's for Babes it's been paired up with a bear and handsome clothes for boys.
clothes are Carter brand size 9 mo.
3rd item - Barbie Holiday Pack
contains XO Valentine Barbie, Easter Magic Barbie,
Enchanted Halloween Barbie, and Christmas Morning Barbie
4th item - Barbie Spring Pack
contains Flower Shop Barbie, Pretty in Plaid Barbie, and Sunshine Day Barbie
5th item - Southern Living at Home Victoria Pressed Glass Compotes
Taste of Home Simple & Delicious Cookbook
set of 8 compotes
6th item - Blue Yonder Tee Shirt
you get to choose style and size
donated from Jen at Blue Yonder Girl
Jen designed Lily's blog page!
7th item - $25.00 Gift Certificate to !Vinyl Explanations!
Kecia at K&K Enjoy the Journey creates fun things for your home with vinyl.
She will design a custom piece just for you!
This is our front door - it says Welcome
It comes off very easily with a blow dryer
We've had Happy Thankgiving, Merry Christmas, and Happy Valentines
8th item - Designer Cards
Staci at MunchieMe Designs has donated beautiful handmade cards!
they come with white enevelopes
9th item - Custom Made Frame
Marlene at The Musings of a Mother has donated a custom made frame ready for your family photo!
10th item - T21 Afghan
Afghan in your choice of colors from The T21 Traveling Afghan Project!
This is Jaxson with his Afghan - quiet please
11th item - SC Line Genuine Lead Crystal Candlesticks
made in Italy, approx. 9" tall, bottom emerald green, top rim finished in silver
12th item - Bracelet from Coldwater Creek
Sterling silver and genuine abalone shell
13th item - SammyTells CD's and A Treasury of Children's Literature
SammyTells has created 3 wonderful CD's where he retells the stories of The Brothers Grimm, Hans Christen Anderson, and Mother Goose. Along with the three CD's is the beautifully illustrated book A Treasury of Children's Literature
14th item - Treasure Box
Amy from Bunny Rose Cottage has donated a beautiful Treasure Box!
15th item - Lisa Leonard Item
Lisa Leonard Designs has donated one of her items!
16th item - Quilt from Grandma Shirley!
17th item - Foursome of Golf
Golf at Thanksgiving Point's championship caliber course!
Valid Sunday - Wednesday after 2p.m.
Lily and her dad, uncles, and lots of friends at the UDSF Golf Tournament at Thanksgiving Point
18th item - Foursome of Golf
Golf the championship course at
Sand Hollow Resort!
In Hurricane, Utah
Valid Sunday - Wednesday after 12p.m.
If you don't see anything you're interested in but would like to contribute to LILY'S BIRTHDAY BASH you can do that here!
Enter the amount you wish to contribute before you hit the "Buy Now" button
Posted by Suzie Smith at 12:05 AM