Thursday, October 9, 2008
Lily is not feeling well today. This is one of the harder things I deal with. You see Lily was born without her esophagus, so they took part of her colon and made her an esophagus. When they did that they give her a nissen (which is a tight ring at the top part of the stomach that doesn't allow stomach acid to come back up into her man-made esophagus and destroy it).
The problem is that when she needs to throw up she can't, it hurts her and there is nothing I can do to help her!
I have been posting everyday on the UDSF blog. Peek at that for some extra reading.
Exciting news we got an email from Dan at Disability TV ( they did Lily's T.V. interview) and they are in the final stages of editing! I think it would be great if they got it done for Down Syndrome Awareness Month!